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The Truth about SUDC

Sudden Unexplained Death in Childhood

Every year, around 400 kids (ages 1-18) in the U.S. die without explanation; every year, around 400 families are devastated and try to get through the day.  These numbers will grow as more cases are identified (via awareness, education, and research), as these numbers are likely greatly underestimated.

Reach

SUDC is the 5th leading category of death in children ages 1-4

Cause

Knowledge of SUDC in the medical community and general public is extremely scarce. At this time, researchers do not know what causes SUDC, how to predict it or how to prevent it. Research is crucial, however no public funding of SUDC research currently exists.

Awareness

Awareness is desperately need.  The more people learn about SUDC, the more funding we can generate for crucial research, then causes can be uncovered, and prevention strategies can be put into place. Maybe one day other parents won't go through the daily torture of having lost a healthy child for no known reason.

Research 

The SUDC Registry and Research Collaborative(SUDCRRC), based out of NYU Langone Health in collaboration with Columbia University Medical Center and Mayo Clinic, is spearheading research efforts through private donations. There are very few other research efforts addressing SUDC.